Dear all: I have been doing the diet since 9/09 and I am so much worse than ever. I have very bad fatigue and am very weak all the time. I have had blood tests, all normal, skin test (no overt allergies), am about to get ELISA for more precise. Honestly, I am at a loss. I recently had to stop going to the pool to do laps since my walking with a rollator is both arduous and draining, and I have fallen a lot (balance is bad). I recently rented a scooter to get around and I am paying for home cleaning and cooking care (I live alone). Is this all just to point that I need to accept being worse? I have been diagnosed for 10 years and until early 2009 I was just using a cane to get around. I need some input. Please comment. I am happy to give details I may have missed, but this is the lowest point I have ever felt. I believe in alternative therapies and try to de-stress, meditate, go to acu, keep the diet.
Kathleen
dear kathleen , you should
dear kathleen , you should check out the facebook for ccsvi , there are so many people getting relif with a very simple procedure , its not a cure and no drugs are required its a simple angioplasty of the affected veins , jugulars or azygous , our vweins are blocked and this unblocks them , combine with the diet and you should get some good results , the arizona heart instiute or dr zvadinov in buffalo , just google ccsvi chronic cerebral spinal venous insuffiicency
Hi Karen I am not a great
Hi Karen
I am not a great fan of allergy tests. I live in the UK and had a very simple allergy test done in a chemist, it showed me allergic to monosodium glutamate, tomatoes, oranges, cheese, chocolate and eggs. About a year later I paid for a further allergy test based on a blood sample which showed me allergic to eggs and milk only. However, I know I react to so many more things, I think my body is the best judge.
I did have help from an alternative health practioner with the vitamins and some of the recommendations were based on blood tests. I take vitamin A, B complex, B12, C, D and E, cod liver oil, evening primrose oil, milk thistle, copper, zinc, selenium and magnesium. I think the most important thing to take is a digestive enzyme with every meal, I use ultra enzymes in UK but I know Enzymedica a company in the US does a super range. I take PB8 probiotic after my main meals - I send to the US for this!
Yes all fruit has gone because of the sugar. If I have even one slice of fruit my face goes numb, my ears "block" up and I get pins and needles and pain in my legs.
I know I suffer from a candida overgrowth. I know this because once I started to take "yeast killing" supplemements I suffered very dramatic die off symptoms. The yeast killer I started with was Mycopryl 680 at a dose of 4 tablets a day, I was following the advise of my practioner on this but now after my own readings I realise this was way too high a dose to start with, but at least it confirmed my problem. I now take Candidase by Enzymedica to control the yeast.
I also forgot to mention in my previous blog that rest is very important, at least one hour bed rest a day or two if you can manage it.
If you are particulary interested in vitamins and supplements for MS and candida there is a great book by Ann Boroch called Healing Multiple Sclerosis, diet detox and nutritional makeover for total recovery. There is also a section at the back of Judi and Ann's Recovery Diet book.
I hope this is some help to you and please don't apologise for asking questions, if it werent for others supporting me on this website I would be in a sorry state by now, so I am more than happy to help you. Good Luck.
Good morning Did you have an
Good morning
Did you have an ELISA test to see what your system is allergic to?
What vitamins do you take?...was this premised on a blood test to see where you are dificient?
Fruits because of the sugar?....all fruits or just ones that have the most sugar?
Sorry for all the questions!
Thank you
Karen
All: thank you so much for
All: thank you so much for your responses. I will look further into CCSVI...regards to the post with diet info - thank you for your story and words of encouragement. I am still facing increased disability, but will continue to follow the diet as closely as I can. Turns out part of the fatigue was related to an undiagnosed UTI...on antibiotic course now for 5 days to combat, and some energy has returned...I guess I will continue on and keep trying with the combo of diet I have engaged, minus as much corn and white rice as possible.
Hi Kathleen, I totally
Hi Kathleen, I totally sympathise with you and am sorry you are feeling low at the moment. It took me a long time to feel the benefits of the diet - 20 months - even though I was very strict , like you I just got worse and worse. I had eliminated gluten, milk, yeast, eggs, legumes, sugar and fruit and kept my saturated fat below 15g per day - and was getting nowhere. My turning point came when I eliminated all grains including the "safe" ones like rice, buckwheat etc and eliminated all starchy vegetables including my beloved squashes, carrots and white potatoes. At this point I knew I was going to make it because I went downhill rapidly over a period of about 2 weeks and then slowly but surely I noticed I was in a better mood, I slept better and was starting to pick up. This improvement continued and after about 10 or 12 weeks I noticed my legs starting to improve.
You may need to revisit your diet, try this really strict version for at least a month with absolutely no cheating, see if you start to feel worse - if you do - you know you are on the right track. There are other things that helped me too, I did coffee enemas, I take digestive enzymes with every meal and probiotics after my main meals. I also take a range of vitamins and minerals and have chelation therapy. I must admit the diet is the real deal - if I mess up on it I feel the difference, if I mess up on anything else I don't notice.
Arm yourself with a supply of green vegetables and lean proteins and make out a menu for about 2 weeks. Give yourself loads to eat, include 4 good sized meals a day ( I eat twice as much food as my husband!). Have vegetable juices between meals, have small amounts of nuts as snacks, keep extra soups or pieces of cooked protein in the fridge for when you are hungry. An example of my dinner would be 2 large skinless chicken breasts sliced and stirfried in a little olive oil with a load of sliced cabbage, add a few almonds if I can afford on my fat limit. I will have enough left over to put in the fridge to microwave for my breakfast. Good mainstays are soup, use zucchini or asparagus or cauliflower or broccoli or celery chop up and simmer in sufficient water to cover the vegetables plus a bit more. When veggies are soft blitz with a food blender - you will get used to what consistency you like and whether you need more or less water. Just add salt and pepper, dont even experiment with herbs until you feel better as you could react to some of these. These soups can be frozen in portion sized containers and used as snacks or suppers.
I am sorry I have written so much but I hope you find something in this that helps you. Stay strong - you can do it!
I totally agree with you,
I totally agree with you, definitely check out CCSVI and if you have a chance to get the procedure then definitely do it. From what I theorize is that it will restore normal blood flow and you can start healing your body and brain much easier than trying to do it with the diet alone.
However under no condition should you come off the diet because this is your support for not getting those veins stuck up again! Maybe we're just the group of people who are not meant to eat modern food! I think of myself as having paleolithic genes, nothing you can do about that except to choose your diet, and of course occasionally you can snack on modern niceties... =)
I'm just waiting until they make CCSVI available to everyone or at least covered by health insurance, I have no money to pay for it otherwise and plus I experience none or at least extremely minor MS symptoms uptil now, thanks to the diet, 3 years on it!! But then I had quite minor symptoms to begin with so it wasn't too hard to start healing I believe.
But also I have noticed that right before the symptoms start to disappear I get worse, it doesn't last long that worseness but then again it depends on the severity of your symptoms.
HINT: Take turmeric supplements, they decrease inflammation and speed up the healing process, I just started eating it and the persistent MS hug is rapidly disappearing!!
Kathleen, along with the
Kathleen, along with the diet, look into CCSVI. This new, simple treatment is turning the MS world upside down, and is extremely promising. My wife has been following the diet for several years, and it has kept her ms in check. However since getting the CCSVI procedure done 9 weeks ago, she has seen some impressive improvements!
Go to the thisisms website for tons of info.