The issue of CCSVI keeps coming up in the e-mails we receive. Now I am not an expert on the subject, but I can contribute some observations and resources.
I talked to a man who had 5 stents placed in his circulatory system last August after an evaluation that he did indeed have CCSVI. This was done at Stamford University where I believe they have stopped all such procedures because one person died and another had a stroke as a result. My informant shared that he has not improved at all in his physical symptoms, if anything he is worse. He feels, however, that the operation was more than his body could handle. He did share that his mind is more alert and he is better cognitively and a slight bit better in handling heat. He said that the operation was the most painful event he had ever encountered in his life. He does not regret doing it at all as he is more alert. He added that sometimes people improve after even more time elapses.
Ashton Embry of the Direct-MS.org is a prime mover in finding a treatment/cure for MS. He has on his website much of the research about this procedure which I suggest anyone read. It is not conclusive as a causative factor for MS in most people, but it does seem to impact some. At first he totally advocated for it, now he has modified his recommendation somewhat. Ashton is a scientist and has the integrity to present the facts as they are, he has no bias and no vested interest beyond the truth and finding an effective treatment/s, so I would follow as he presents the unfolding data on his website. If there is some data about who is helped by this procedure and who is not, it will be posted on this site. The website is www.Direct-MS.org.
One thing I have observed over my years of being intimately connected with this disease—there is often a strong placebo effect with any treatment. There has been a lot of hype, first about the ABC drugs, later CRAB drugs, they about Tysabri, and now about the stents for CCSVI. Multiple Sclerosis has befuddled them all, so be cautious with your body.