Hello,
Does anyone have any suggestions or stories about dealing with people who think you are irresponsible in choosing a diet you believe in rather than drugs you feel are over-hyped, not that effective, and potentially dangerous? Also, are there any Neurologists who believe in the effectiveness of this diet? They seem to think that no clinical study equals no merit.
That seems like wonderful
That seems like wonderful advice!! I am stressing over a forthcoming visit to the dreaded neurologist. In all honesty i dont really have that much to do with them as i have a wonderful ms nurse who tends to be more human!!
I received a telephone message out of the blue saying they want me in for more tests and another lumbar puncture ( spinal tap-i`m British, ignore me!! ) i`ve already had 2 and a diagnosis, so i`m totally baffled as to what they are trying to prove!!
In my head i`m going in there all guns blazing shouting the virtues of the diet, as my last mri showed no disesase activity present and no progression into the brain stem!!! ,but in reality i know it will fall on deaf ears. I will take a leaf out of your book, keep quiet, smile sweetly and continue to baffle them!!!
Regards Sarah.
Hello! Unfortunately, I've
Hello! Unfortunately, I've had terrible luck in having neurologists take any interest in anything other than the usual drugs. For family, I've had to completely back off of trying to explain what I'm doing. They weren't in full support, confused, wondering why I was doing this crazy thing instead of just trying to get the drugs, and so on, SO I've just plain stopped telling anyone anything! Luckily, my husband is very supportive of my efforts, which helps. But, even with him, I don't make a big deal of it. I make him and my boys their food and then I have "my version" of it and just continue on. My advice on this is just don't say anything. IN FACT, here's something kinda funny. I had another MRI this past week and have a follow up appointment scheduled with my neurologist in another week to read the results. I have NOT told my neurologist that I have been doing the diet, have NOT told him that I've also sought the help of a holistic doctor, BUT still had the MRI, because I want to use it to measure the success of MY approach. Shhhhh. . .He doesn't need to know, eh? ; ) I'm very curious to see what it says. . .regardless, I'll continue forward. This just seems like the right path to take. Ana
Neurologists ., MS Society,
Neurologists ., MS Society, drug companies aren't interested in diet. I don't waste my breath. When I was diagnosed, I was told to follow Canada's food guide. Occasionally I hear some positive response via someone else but it's rare.
Luckily my husband loves the diet, my mom has a hard time understanding it so I just bring my own food. It bugs me that other people feel they can judge or comment. Food is very personal and if you had diabetes would be people be telling you what to eat?
Good luck,
Teena Marie
all my neurologist will say
all my neurologist will say is try it as long as its inexspensive as there are a lot of gimicks , i wish we could get steem cells easilt without chemo
I do both Avonex and the
I do both Avonex and the diet and am doing very well. I am not comfortable giving up my Avonex, especially after watching my mother suffer 23 years from M.S.
Hi, I also have encountered
Hi,
I also have encountered the same problem.
I am encouraging my daughter to try this diet, but her husband only believes in what her neurologist recommends..Tysabri,etc..and she is more willing to follow her husband's advice.
If I could cite a bonafide neurologist they might both come around.